Sickle Cell Disease (SCD) is a chronic, inherited red blood cell disorder. The red blood cells have an abnormal crescent or half-moon shape, block small blood vessels, and do not last as long as normal red blood cells. The blocked blood flow through the body can lead to severe problems, including stroke, eye problems, infections, and episodes of pain. September is Sickle Cell Awareness Month. This is a time for action. The Sickle Cell Foundation of Georgia (SCFG) continues to advocate for better treatment and equitable care. Tabatha McGee, the CEO of SCFG, joins us today to speak about their mission.
The last time we spoke with the Sickle Cell Foundation of Georgia, there was a new gene therapy treatment, and I asked McGee about the status. McGee shares that a gene therapy treatment that was touted as a cure is incredibly expensive, not readily available, and has strict qualifications for use.
McGee speaks about the rarity of Sickle Cell Disease and that it manifests in different ways for most patients. She also explains the differences between having the sickle cell trait and having sickle cell disease. Additionally, she speaks about exertion and high altitudes that have been known to bring about symptoms of the disease in those who otherwise might not exhibit any symptoms. We speak about family health history, hereditary challenges, and those bad habits that we may have picked up along the way.
The Sickle Cell Sanctuary, which provides a holistic place for those with the disease, including fitness, food, massages, mental health, and a nurse practitioner. McGee speaks about their New Light Camp that allows children and young people with the disease to have recreation and respite.
For more information on the Sickle Cell Foundation of Georgia.